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Patient Experience Policy Forum Policy News
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Policy News

News and statements from the Patient Experience Policy Forum appear below.

It’s Time To Take Patient Experience Measurement And Reporting To A New Level: Next Steps For Modernizing And Democratizing National Patient Surveys PX Policy Forum Comments on Proposed Updates for HCAHPS to assess communication about the cost of care - March 16, 2020 

A new position paper from PXPF published via Health Affairs Blog and authored by PXPF Co-Chairs Rick Evans and Shari Berman and members Esther Burlingame and Stephanie Fishkin proposes that while standardized Consumer Assessment of Healthcare Providers and Systems (CAHPS) measures have played an important role in efforts to improve patient experiences, it is time for a comprehensive effort to modernize and democratize all surveys and related data used to assess patient experiences with care. The article highlights the major improvements needed to modernize national patient experience surveys, by making the data more accessible and understandable to all health care stakeholders.

Read the full position paper.

Recommendations for Modernizing and Democratizing Patient Surveys

Publish question-level benchmarks: Provide the full distribution of survey response options and linear mean scores for each question, for every hospital/entity, to allow access to national benchmarks that are vendor-neutral. Publish benchmarks by peer groups: Provide results by facility type (teaching, safety-net, urban, rural); size (small, medium, large); and ownership (non-profit, for-profit) to compensate for inadequacies in case-mix adjustment. Level the playing field: Continually refine case-mix adjustment models to assure fair and valid comparisons across health care organizations. Refine invitation messages: Test and implement messages and marketing techniques that motivate increased patient responses, especially among hard-to-reach populations. Include patient narratives: Add open-ended survey questions to capturepatient feedback that complements and expands on data obtained from standardized closed-ended questions. Update survey content: Routinely update survey topics and question wording based on patient, family, and caregiver input, using evidence-based research methods. Publish trend data: Provide results over time in order to track improvements or declines in performance. Provide access to adjustment software: Create open access to analysis programs that provide the variables and algorithms needed for easily replicating CMS adjustment methodologies. Align regulatory and certification standards: Coordinate CMS survey requirements with programs such as ANCC/Magnet, Joint Commission, NCQA, URAC, etc. to reduce data collection burden on patients and health care organizations. Enhance public reporting: Provide patients and families with easily accessible and relevant information to support health care decision-making, and identify ways to increase consumer awareness and use of public reports. Include all payers: Include patients in survey samples that are covered by all payers -- including Medicare, Medicaid, and commercial plans – to achieve more representative results. Expand survey modes: Develop and test new survey administration methods such as email, IVR, and web and smartphone applications to support more efficient and timely data collection.

PX Policy Forum Comments on the Value of Patient Narratives in the CAHPS for MIPS Survey - September 27, 2019 

The Patient Experience Policy Forum (PXPF) is a broad-based coalition of health care organizations and patient and family advisors engaged in advocacy and action to give a greater voice in health care policy to those working to improve the patient and family experience. We appreciate the opportunity to offer comments on the proposed rule updates to the CMS Quality Payment Program, specifically in regards to endorsing the addition of open-ended questions on the CAHPS for MIPS Survey.

Read the Full Summary.

CMS Introduces HCAHPS Survey Individual Question Top-Box Scores to the Summary Analyses Page - December 10, 2018 

Read the Full Summary.

PXPF Policy Update: CMS request for comments related to pain measurement - September 6, 2018 

We want all members to be aware of an opportunity to comment on recent proposed changes to the HCAHPS Pain Domain.  A document (attached below) – prepared by our PXPF Workgroup on Measurement - walks through the background on this issue and how you or your organization can offer comments.  At PXPF's recent meeting with CMS this spring, one of the things they suggested the PXPF can do is to promote the process to give comments to CMS.  This effort is one way we can do that.

Letter from PXPF Workgroup on Measurement
Issue overview and comment opportunity summary

PXPF Meets with CMS Leadership - May 10, 2018 

On Thursday, May 10, 2018, a delegation from the Patient Experience Policy Forum (PXPF) met with leaders from the Centers for Medicare & Medicaid Services (CMS) in Baltimore to discuss topics related to patient experience measurement and patient/family engagement.

Read the full meeting summary.

A statement on The Children's Health Insurance Program (CHIP) - January 19, 2018

The delay in extending CHIP undermines the fundamental tenet of healthcare as human beings caring for human beings.

The Patient Experience Policy Forum, a coalition of healthcare organizations and patients focused on ensuring strong and positive patient and family experience in healthcare as well as policy that supports that, believes a fundamental element of patient experience includes access to care itself.  Accordingly, the Forum is deeply concerned that the future of CHIP hangs in the balance.

Read the Full Statement.


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