PATIENT EXPERIENCE POLICY FORUM CHARTER
Who We Are
The Patient Experience Policy Forum (PXPF), supported by The Beryl Institute, is a broad-based and diverse coalition of patients, family members, caregivers and healthcare professionals uniquely led by a balanced board of Patient/Family Partners and senior patient experience leaders. Our purpose and commitment is to advocate for and help shape policy at the national and local levels on issues that directly affect patient and family experience and elevate the human experience in healthcare. We do so through convening policy forums, educating policy makers, sponsoring advocacy events, providing communication updates and publishing calls to action.
We believe that the interests of patients, families and caregivers must drive all public policy aimed at improving the health care experience.
We advocate for policies that will:
- Advance Patient-Provider Partnerships: Patients and families and their clinical care providers must be at the table at all levels of health care policy-making.
- Strengthen Support for Patient and Family Involvement: Patients and families must be provided with education, tools and support to effectively participate in policy-making and in their own care.
- Strengthen Support for Professional Involvement: Health care professionals must be provided with education, tools and support to build effective relationships with patients and families.
- Reduce Disparities: Disparities in the care experienced by patients and families from vulnerable and marginalized populations must be reduced or eliminated entirely.
- Improve Patient-Centered Measurement and Reporting: Methods of assessing and reporting patient experience must be made more efficient and effective for both patients and providers.
- Elevate the Value Case: The direct connection of patient experience to health care outcomes must be clearly defined and integrated into all relevant policy and reimbursement structures.
The PXPF seeks to influence specific public policy priorities by building alliances to leverage and advance our common interests. We convene policy forums, educate policy makers directly, sponsor advocacy events, and provide periodic publications and communication updates and calls to action.
The PXPF operates as part of The Beryl Institute and is governed by an Executive Board representing health care organizations, patient and family advisors and advocacy groups. The Board and all PXPF Workgroups are co-led by health care organization leaders and patient/family advisors. This “two-by-two” leadership structure ensures a balanced representation of the provider and patient/family perspectives. The work of the Forum is focused on issues identified by the PXPF membership, validated by its Board, and operationalized by Workgroups comprised of health care organizations and patients. While PXPF engages with all voices in dialogue about our priorities, the Executive Board and Workgroups purposefully operate free of influence from those with any financial or commercial interest in our outcomes and actions.
> Download the Charter PDF
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For more information or questions please contact: firstname.lastname@example.org