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Patient and Family Advisors Resources
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The PFA Resource provides two collections of resources. The first collection are those found in the extensive work currently taking place in various organizations, associations and elsewhere committed to the the needs, learning and development of patient and family advisors. This list of resources will continue to grow as new offerings are discovered or created in ensuring a rich and robust information library for patient and family advisors. This list will be available to anyone in the healthcare marketplace.

The second collection features PFAC focused content from The Beryl Institute’s Learning and Professional Development extensive offerings, some of which may only be accessible to members of the Institute.

Have a resource you would like to see added to the list? Contact us at

External Resources


Agency for Healthcare Research and Quality (AHRQ)
The Agency for Healthcare Research and Quality's mission is to improve the quality, safety, efficiency, and effectiveness of health care for all Americans.

Institute for Patient - and Family-Centered Care (IPFCC)
The Institute for Patient- and Family-Centered Care serves as an information resource center for patient and family leaders, clinicians, administrators, educators, researchers, and facility designers who are interested in advancing the practice of patient- and family-centered care.

Joan's Family Bill of Rights
The mission of Joan’s Family Bill of Rights is to help exceed patient expectations by enhancing the experience of patients and their family members.

PFCC Innovation Center
Patient and Family Centered Care, as a concept, is healthcare that is compassionate, includes patients and families as partners and collaborators, is provided with respect, and treats patients and families with dignity. It is care that revolves around the needs and desires of patients and families rather than around the organizations and systems in which it is provided. Learn more about patient and family centered care and the PFCC Innovation Center of UPMC.

PFCC Partners
PFCC Partners’ vision for improving the quality, safety and experience of healthcare through the development of authentic partnerships from the bedside caregiving relationship to the boardroom where programs and policies are established. PFCC Partners is committed to collaborating with patients, families, physicians, health care administrators, nurses, therapists, social workers and all those invested in improving health care.


American Hospital Association (AHA) - Hospitals in Pursuit of Excellence via HRETPartnering to Improve Quality and Safety: A Framework for Working with Patient and Family Advisors
To truly transform care, hospitals and care systems must effectively engage patients and their families. This guide presents a framework for one powerful way to engage patients – as advisors on quality and patient safety initiatives.

A Roadmap for Patient and Family Engagement in Healthcare – Gordon and Betty Moore Foundation/American Institute for Research
The roadmap is a call to action for anyone interested in advancing work related to patient and family engagement. It includes:A vision for patient and family engagement in healthcare; 8 change strategies to drive action towards increased patient and family engagement and 5 simple actions that different stakeholder groups can begin today.

Patient and Family Health Care Leadership: A Resource Compendium
Made possible through the generous support of the Gordon and Betty Moore Foundation and conducted through the work of participants in the Patient & Family Leadership Network, this Compendium was created to assist and to inform volunteer patient & family council leaders who have from its inception, and continue to, contribute valuable feedback.

PFACs: From Starting Up to Sustaining
Created by Barbara Lewis, Founder, Joan's Family Bill of Rights, this Google Drive Document is set-up like a Wiki for the purposes of learning and sharing information regarding PFACs.

Resources from The Beryl Institute

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The Beryl Institute
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