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Experience Ecosystem - Associated Organizations - Patient, Family & Community Engagement
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The level of the Experience Ecosystem focused on Associated Organizations identifies and connects you to organizations that provide insights and resources beyond the Institute’s boundaries. Associated Organizations are those identified as focused on experience improvement and excellence in some capacity that primarily operate with the intent of a social enterprise in a non-vendor capacity.

Inclusion as an Associated Organization in the Ecosystem in no way represents a formal partnership with or endorsement of the organization by The Beryl Institute. Rather, it is an acknowledgement of the role these organizations play in reinforcing the central purpose of the Ecosystem and reflects the breadth of connection and importance of collaboration in the work of elevating the human experience in healthcare.

Academy of Communication in Healthcare (ACH)

ACH is committed to improving communication through innovative research and teaching relationship-centered healthcare communication.


ACPE is the premier, DOE-recognized organization that provides the highest quality CPE programs for spiritual care professionals of any faith and in any setting.

Association of Child Life Professionals (ACLP)

The ACLP advances the field of child life by establishing and maintaining professional standards, enhancing the professional growth and development of members, and advancing the credibility of the child life profession by fostering research and promoting the standards of child life practice on a national and international level.  

Caregiver Action Network

CAN is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Center for Health Design

The Center for Health Design advances best practices and empowers healthcare leaders with quality research that demonstrates the value of design to improve health outcomes, patient experience of care, and provider/staff satisfaction and performance. 

Children’s Hospital Association

The Children's Hospital Association advances child health through innovation in the quality, cost and delivery of care with our children’s hospitals.

Health Research & Educational Trust (HRET)

Leveraging research and education to create a society of healthy communities, where all individuals reach their highest potential for health.

HealthCare Chaplaincy Network (HCCN)

HCCN is a global health care nonprofit organization that offers spiritual care-related information and resources, and professional chaplaincy services in hospitals, other health care settings, and online.


HIMSS is a global, cause-based, not-for-profit organization focused on better health through information and technology. HIMSS leads efforts to optimize health engagements and care outcomes using information technology.

Institute for Patient- and Family-Centered Care (IPFCC) (tc)

IPFCC facilitates patient- and family-centered change in all settings where individuals and families receive care and support.

National Health Council

We are the united voice for patients with chronic diseases or disabilities and their family caregivers. The NHC and our more than 120 diverse national health-related organizations and businesses who work together to develop visionary strategies to improve patient access to better care and treatments.

Patient Experience Policy Forum (PXPF)

PXPF is a broad-based coalition of organizations and individuals engaged in advocacy and action to give a greater voice in health care policy to those working to improve the patient and family experience.

PFCC Partners

PFCCpartners is a small organization with a large vision to reinvent the healthcare industry so that hospitals, healthcare organizations, and stakeholders continuously partner with empowered patients and families as a strategy in the co-design of healthcare delivery. Built on a foundation of lived-experiences and Advisory efforts, PFCCpartners develops strategies, programs, and structures for the authentic integration of patient and family centered care.

Picker Institute

Picker is an international charity working across social and health care.

Pioneer Network

Pioneer Network advocates and facilitates deep system change and transformation in our culture of aging.


Planetree is a non-profit organization that provides education and information in a collaborative community of healthcare organizations, facilitating efforts to create patient- centered care in healing environments.

Point of Care Foundation

We are an independent charity with a mission to humanise healthcare. We offer support and training in person-centred quality improvement, using proven techniques in co-design and patient and family engagement. We also support the implementation of staff wellbeing programmes within organisations.

Society for Participatory Medicine

Participatory Medicine is a movement in which patients and healthcare professionals actively collaborate and encourage one another as full partners in health.

The Eden Alternative

The Eden Alternative is an international organization dedicated to creating quality of life for Elders and their care partners, wherever they may live.

The Green House Project

We partner with organizations, advocates, and communities to lead the transformation of institutional long-term care by creating viable homes that spread THE GREEN HOUSE® Project vision.

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