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Webinar - Heart to Heart: Co-Designing a Parent Support Program
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When families receive a devastating diagnosis that their child has a life threatening medical condition, their lives are forever changed. Research is clear that as a result families experience PTSD, higher levels of anxiety and depression and an increased need for emotional support. Join this webinar to hear how a parent to parent model supporting families who have children with life threatening medical conditions is effective in stress reduction.

7/21/2020
When: July 21, 2020
2:00pm ET
Where: United States

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Heart to Heart: Co-Designing a Parent Support Program

Darla Cohen, BS, MS, CPXP, Project Manager Patient Experience, Riley Hospital for Children at IU Health
Dana Hartman, MSN, PNP-C, Pediatric Cardiology Nurse Practitioner, Riley Hospital for Children at IU Heatlh
Stacey Snellenbarger, MSN, FNP-C, Family Advisor/Parent, Riley Hospital for Children at IU Health

July 21, 2020 - 2:00-3:00 PM ET

When families receive a devastating diagnosis that their child has a life-threatening medical condition, their lives are forever changed. Research is clear that as a result families experience PTSD, higher levels of anxiety and depression and an increased need for emotional support. 

A parent whose child was born with Hypoplastic Left Heart Syndrome shared her idea for providing support from one parent to another with her nurse practitioner. With the help of the hospital’s project manager for patient experience, the Single Ventricle Heart Mentors program was launched. Join this webinar to hear how a parent to parent model supporting families who have children with life threatening medical conditions is effective in stress reduction.

Learning Objectives

  • Cite the advantages for using a parent to parent model to support families who have children with life threatening medical conditions.
  • Identify the components of a successful parent mentoring program.
  • Describe two strategies for overcoming potential  barriers to the implementation and sustainment of a parent to parent mentor program.

Learn More about Riley Children’s Health:

As Indiana’s only comprehensive children’s health system, Riley Children’s Health provides leading-edge medicine and compassionate care to more than 300,000 inpatients and outpatients from across the state and nation, and around the world. It is the only hospital in the state to be ranked among the top children’s hospitals in the nation by US News & World Report (2020-2021); ranked in ten of ten specialties.


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