My pathway to The Beryl Institute was more personal than professional. An innovative experienced association executive with over 30 years of membership and marketing experience in the non-profit community was my experience detailed on my resume; however, being a mom of a now 24-year old daughter diagnosed with Multiple Sclerosis (MS) at the very young age of 13 is my personal patient experience backstory. Yes, I said 13. Unfortunately, she was the youngest to receive the diagnosis, and I was a mother not prepared mentally, emotionally and financially to deal with the journey that lie ahead.
During that period, the Institute didn’t exist; however, I believe somewhere in the atmosphere, its creation was being conceived. Had it not been for the extraordinary care and education of the disease received from a multitude of facilities caring for and nurturing my daughter, we would not be in the place of peace and understanding where we reside to this day. Her MS is currently in remission and has been for the past 8 years. She’s living a full life independently working on her Master’s degree in Mental Health Counseling with the concentration on teens diagnosed with incurable diseases.
Since her diagnosis, my primary focus was to connect to organizations that provided a level of passion and patience for the community of individuals it serves that had a personal impact on my life. I was fortunate enough to connect with two…one, working for a counseling association for the past 10 years, to my current role which began on November 1, 2016, as Vice President, Membership with The Beryl Institute. In this role, focusing on the members’ needs, membership development, member satisfaction, member retention and acquisition efforts are my priority.
To gain insight into the membership of the Institute to ensure our members have the best membership experience possible and that our programs and events continue to exceed your expectations now and in the future, conducting a membership survey was essential. The survey addressed four broad areas:
- Member Demographics – Learn more about our members.
- Perception of The Beryl Institute – Are we meeting your needs?
- Membership Investment – Overall member satisfaction.
- Challenges and Needs – What’s keeping you up at night?
We were encouraged by the strong participation from our members and look forward to implementing efforts that reflect your feedback. Here are a few highlights:
Demographics – The Institute’s membership is made up of members coming from across the continuum of care in primarily hospitals/healthcare systems; however, we are seeing growth in other areas and are excited by the opportunity to support the growing field of patient experience.
Perception – We are excited by how the community views the Institute and its valuable resources and that so many members want to spread the word about the Institute to their colleagues. Watch your emails in the coming months on how you can continue to be an Institute membership ambassador using a special resource toolkit designed to make talking about the benefits, products and services of the Institute a little easier.
Investment – The investment in the Institute supports the continued work of the patient experience community and the growing field. Improving the Value on Investment, which is those intangible assets of membership in Institute such as knowledge, processes, the organizational structure and ability to collaborate/network, will continue to be priority.
Challenges – Although faced with a variety of challenges, the common concerns were the patient’s experience, engagement of staff to physician and project time management. Connecting to any one of the Institute’s Patient Experience Member Listservs provides a way of improving communication among your peers, offer a forum for exchanging ideas and allow you to benefit from the experience, knowledge and wisdom of others.
The information collected on the awareness of, use of, satisfaction with and perceived value or perceived importance of The Beryl Institute’s programs and services will provide the continued framework for assessing our current performance, modifying existing programs and services and the development of new offerings to deliver improved value to the patient experience community.
The Institute is committed to being a leading organization that identifies and addresses member needs more effectively and one that provides an optimal suite of patient experience resources.
Denise R. Brown
Vice President, Membership
The Beryl Institute