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Institute Patient Experience Scholars
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The Beryl Institute Patient Experience Scholar Program reinforces our commitment to support the growing conversation on the importance of the patient experience in healthcare and our focus on framing and expanding the body of knowledge on this topic. The program supports Professional Doctoral Students as they conduct research associated with the patient experience. Candidates come from across the Healthcare educational spectrum from Nursing to Management to Healthcare Administration.#

Identified, recognized and supported by The Beryl Institute, Patient Experience Scholars are scholar-practitioners at the forefront of expanding the body of research on the patient, resident and/or family experience and represent a community of thought leaders committed to exploring ideas and practices that will lead to positive healthcare outcomes.

 


2016 Institute Patient Experience Scholars:

 

Doctorate of Public Health Candidate

Johns Hopkins Bloomberg School of Public Health


 


2015 Institute Patient Experience Scholars:

PhD Candidate
University of Cincinnati College 
of Nursing
Doctor of Philosophy Candidate

University of Tasmania, Australia


Doctor of Nursing Practice Candidate
University of Southern Indiana


2014 Institute Patient Experience Scholars:

PhD Candidate, Organizational Development
Benedictine University
Manager, Operations and Support Services
University of Michigan Health System
Instructor and Doctoral Student -
Department of Communication
University of South Florida
 
Senior Lecturer
University of Mauritius


PhD Candidate, Organizational Leadership
Chicago School of Professional Psychology
Director, Service Excellence
Robinson Memorial Hospital



2013 Institute Patient Experience Scholars:

PhD Candidate
University of Washington
DNP Candidate
University of Massachusetts
at Dartmouth
Private Contractor
CRNA Group, Anesthesia Professionals
DHA Candidate
Medical University of South Carolina
Vice President
Applied Medical Software

 

 


2012 Institute Patient Experience Scholars:


 

Karen Grimley
PhD Candidate, Nursing
Christine E. Lynn College of Nursing
at Florida Atlantic University
Chief Nursing Officer
UC Irvine Medical Center

PhD Candidate, Operations Management
The Ohio State University

Kimberley Barker
PhD Candidate, Benedictine University and Manager, Operations and Support Services, University of Michigan Health System

Research Title:
How Patient- and Family-Centered Care is Impacting Health Care at a Major U.S. Health System

Research Description:
This completed research will give a qualitative assessment of Patient-and Family-Centered Care from the point of care with the customer, the patient. This research will also help the University of Michigan Health System assess the organizational impact of this program with the customer/ patient, which is why this work is happening in the first place. Research Questions are: 1) Is Patient- and Family-Centered Care at the University of Michigan Health System creating a culture of collaboration and partnership among patients, families, staff and faculty throughout the continuum of care? 2) Are we advancing Patient- and Family- Centered Care using the principles of the Ideal Patient Care Experience as outlined by the Institute of Medicine? This research will add to the body of knowledge about the impact of Patient- and Family-Centered Care principles in a major U.S. health system. This research will potentially assist with a greater awareness of Patient- and Family-Centered Care and it’s potential impact on healthcare organizations around the country.
 
Bio:
Kimberley Barker has more than 24 years of management experience in operations and customer service. She has worked as a Manager at the University of Michigan Health System as a Project Manager, Community Relations Manager and Manager in Operations and Support Services for 14 years. She is very involved with Lean processes and Patient- and Family-Centered Care. Prior to that, she had 10 years of commercial banking experience. Barker teaches management, organization development, marketing, business research & communication and innovation at Cleary University in Ann Arbor, MI. Barker has a Bachelor of Science degree in Business Administration and an MBA from Hawai’i Pacific University in Honolulu, HI. She is currently a Doctoral Candidate in Organizational Development at Benedictine University.

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Meredith L. Clements 
Instructor and Doctoral Student - Department of Communication, University of South Florida, Manager

Research Title:
Expanding Conceptions of Patient-Centered Dialogue

Research Description:
Drawing from participant observations and in-depth interviews, this study will address the experiences of cancer within a space of gendered aesthetics. Hair loss and baldness are highly gendered issues. A woman with a shaved head deviates from the social expectations of how "woman” or "healthy woman” should be performed. Thus, the goals of patient-centered communication should address the various particularities of the female cancer patient, including the aesthetic aspects of cancer treatment. As Moffitt’s stylists are women and almost all clientele are woman, this salon serves as a fitting site for examining and perhaps challenging the notion of what does and does not qualify as a healthcare need. This study hopes to provide insight into effective qualitative interview methods. Additionally, this study aims to provide greater insight into women’s experiences of cancer and hair loss.
 
Bio:
Meredith L. Clements is a PhD student in the Communication Department at the University of South Florida. Her research in the health communication field focuses on women’s health, doctor-patient-staff communication, and diffusion of technology in health care organizations. She conceptualizes illness as an ongoing experience and process. Her Master’s research on health information technology and strategies of diffusion at Georgetown University crossed institutional boundaries, bringing Georgetown’s School of Medicine in conversation with her Communication, Culture, and Technology Program. Meredith’s second Master’s is from the University of North Carolina at Chapel Hill. As a student in the Communication Studies Department, she studied critical organizational communication with an emphasis on nontraditional medical education models. Meredith has a passion for teaching, especially public speaking and interpersonal communication courses.

Amy Costanzo
PhD Candidate, University of Cincinnati College of Nursing

Research Title:
Identifying Information Needs and Strategies for Patient Involvement in Hospital Safety

Research Description:
The top 3 causes of hospital patient harm and death between 2013 and the second quarter of 2015 are human factors, communication and leadership (The Joint Commission (TJC), 2015). Since 2004, 9,119 patient harm or death events were reported with 474 in 2015 alone (TJC, 2015). Over 66% of events since 2004 occurred in hospitals with over 57% representing patient deaths (TJC, 2015). The Institute of Medicine (IOM) report Educating for the Health Team (1972), recommended interprofessional education (IPE) to support interprofessional collaborative practice (IPCP). Recent reports emphasize a need for healthcare organizations, academia, and the U.S government to seek evidence of collaboration (IOM, 2001, 2003, 2011, 2014), education (IOM, 2004, 2010, 2014), and intervention outcomes indicative of increased safety for patients (IOM, 2015). IPE interventions to promote IPCP are deemed necessary to reduce error (Fulmer & Gaines, 2014; IOM, 2000, 2001, 2003, 2010, 2011, 2013, 2014, 2015; RWJF, 2011, 2015; WHO, 1978, 2010). Despite many IPE studies, few causal relationships between IPE and healthcare outcomes exist (IOM, 2015). Few studies have examined the cultural values, beliefs and practices of IPCP in acute care hospitals. Even fewer assess these cultural aspects and context prior to IPE or IPCP intervention. Studies of adult acute care medical surgical unit culture in the United States have not been found. This study is of the culture of collaborative practice (IPCP) in adult acute care medical surgical units. Results will inform understanding of current barriers or facilitators to IPCP that impact patient care.
 
Bio:
Amy J. Costanzo earned her ADN (summa cum laude, 1996) and BSN (magna cum laude, 1997) from Miami University, Oxford, Ohio. Amy has progressive leadership experience from bedside to educator, to manager, and currently Director of Nursing Administration at University of Cincinnati Medical Center. She earned an MSN with a concentration in Nursing Administration from the University of Cincinnati, College of Nursing, in 2010. She then taught nursing leadership for the UC CoN Nursing Administration MSN program. Amy is a Jonas Scholar, and is certified in Professional Development by the ANCC. She is a consultant on a three year HRSA funded project to implement nurse-led interprofessional rounding on surgical units. Her record of scholarship includes three articles published in peer-reviewed journals. She is currently a Ph.D. student at UC CoN. Her dissertation addresses the culture of interprofessional collaborative practice in adult acute care medical surgical units.

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Kelly Edwards
Doctor of Philosophy Candidate, University of Tasmania, Australia

Research Title:
"Nothing About Me Without Me": The Co-Creation of a New Patient Experience Measurement and Feedback Instrument

Research Description:
Healthcare professionals worldwide are increasingly broadening their focus to include the experiences of patients and their family members as a means of assessing quality patient centered care. The purpose of this study is to co-develop an inpatient hospital experience instrument, designed to capture real time descriptive data with a corresponding feedback mechanism to frontline clinicians. A participatory research methodology will be used, whereby patients, friends, family and healthcare clinicians are equal co-developers. A research advisory group of co-developers will guide the development, testing and evaluation of the new instrument in an acute care hospital setting. Such an instrument will expedite the communication of patients' experiences directly back to clinical staff so they can act on this feedback in a timely manner.
 
Bio:
Kelly J. Edwards is a PhD Candidate at the University of Tasmania, Australia. She has a Bachelor of Nursing with first class honors and university medal from the University of Tasmania. She has previously received a Bachelor in Business Administration from the International University of Monaco. Kelly is currently a Registered Nurse at St Vincent’s Private Hospital Sydney, Australia (a Magnet hospital) and was the recipient of their 2015 Nursing Professional Development, International Nurses Day Award. In 2014 she presented her published findings (Contemporary Nurse) ‘What Really Matters? A Multi-View Perspective of One Patient’s Hospital Experience’ in Beijing, China at the ISPOR 6 the Asia Pacific Conference. Her current research focuses on the development of a new patient experience measurement and feedback instrument, designed to provide qualitative rapid feedback to frontline clinicians. The findings from her recent literature review were recently presented at the Higher Degrees by Research (HDR) Conference in Hobart and at the Australian College of Nursing Forum in Brisbane, Australia. She is passionate about the importance of identifying what matters most to the individual in their healthcare journey.

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Karen Grimley
PhD Candidate, Nursing, Christine E. Lynn College of Nursing at Florida Atlantic University and Chief Nursing Officer, UC Irvine Medical Center

Research Title:
Identifying Descriptions of Quality Nursing Care Shared by Nurse and Patient in an Acute Care Hospital Environment

Research Description:
Research Questions: 1. What are the perceptions, behaviors, attributes and feelings nurses and patients use to describe quality nursing care experienced in the acute care hospital setting? 2. Do nurses and patients have any shared descriptions of quality nursing care? This qualitative study addresses the lack of information available about nurse and patient descriptions of quality nursing care in the acute care hospital setting. Without these descriptions, it is difficult to ascertain when high quality nursing care occurs or the impact the nurse patient relationship has on that care. Furthermore, the lack of these descriptions and their possible interrelatedness can lead to inadequate or misunderstood communication that compromises patient safety and the quality of care. Better understanding of the interrelatedness of nurse and patient descriptions of nursing care could lead to improvements in the nursing care delivery process which could have a profound effect on the patient’s clinical progress and perception of nursing care quality. In addition, this study may expose direct or reciprocal language of perceptions of the care experience that further define the influence of the nurse patient relationship on the quality of nursing care. The emergence of common themes and verbiage may contribute to a tangible definition of quality nursing care that has shared meaning not only for the nurse and patient but for nurse and hospital leaders as well.
 
Bio:
Karen Grimley has been the chief nursing officer of UC Irvine Medical Center since November 2010. She is responsible for professional nursing practice and the delivery of high quality, patient centered nursing care. In addition, Karen serves as a leader of hospital-based initiatives aimed at improving patient care and clinical outcomes. Karen has more than 25 years of experience in the nursing profession. Prior to joining UC Irvine Healthcare, she held senior positions at Broadlane, Clinical Consulting services and served as CNO for three Tenet Healthcare medical centers in Florida. Karen was named Best Director of Nursing by Florida Medical Business in 2001 and was honored by the Sigma Theta Tau International Honor Society of Nursing. Karen received her Bachelor of Science in Nursing from St. Anselm College in Manchester, N.H. and completed her Master of Business Administration at Anna Maria College in Paxton, Mass. She is pursuing a doctorate in nursing from Christine E. Lynn College of Nursing at Florida Atlantic University.

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Hemant Kassean
Senior Lecturer, University of Mauritius

Research Title:
An Investigation into Patients' Perceptions of Service Quality of the Public Health Care Sector of Mauritius

Research Description:
Why look at the patients’ experience? One of the key concepts underlying patients’ involvement is the belief that informed choices will lead to enhanced quality. Individualized care, tailored to meet patient’s needs is central to patient experience. Significant others and the family members also form part of this philosophy according to Wolf (2014). Patients’ voices can provide policy makers, regulatory bodies, hospitals, and consumers with a window onto what is happening at the front lines of care and provide opportunities to set themselves apart. All of these parties can use this information to gauge quality of hospital care from the patients' perspective (Marino and Marino, Hayes 2000). Hospitals can use this information to focus on specific areas for improvement, strategic decision making (Sower et al. 2001), managing the expectations of patients (Hickey et al. 1996), and benchmarking (Dull, Lansky, and Davis 1994). Ultimately, the reporting of patient evaluations can influence the delivery of care (Howard et al. 2001).
 
Bio:
Hemant Kassean has been at University of Mauritius for 14 years. He graduated with an MBA from Henley Management College, Oxon, UK and is currently senior lecturer at the Department of Management. He has a background in health and has worked both in the public and private sector. He was appointed as clinical practitioner at UCLH in the NHS, UK for 4 years. He has also held the post of clinical services manager in the private sector in Mauritius. His areas of interest are service quality, entrepreneurship and marketing, patient experience. He has undertaken a number of research projects and has published in international refereed journals. He is actively involved in International conferences as International Co-ordinator, International Advisory Board Member, Organizing Committee member and is also a member of the Editorial Board of Contemporary Management Research.

Tami Lewis
PhD Candidate, Chicago School of Professional Psychology and Director, Service Excellence, Robinson Memorial Hospital

Research Title:
The Relationship between Leaders Who Contribute and Influence the Sustainability of High Patient Satisfaction Scores

Research Description:
This study will explore the phenomenon of healthcare leaders who contribute and influence the sustainability of high patient satisfaction scores The analysis will be a qualitative study that will that will develop a composite study of the essence of the experience among healthcare leaders who have consistently high patient satisfaction scores. Using a phenomenological approach will allow for exploration of common behaviors based on the relationship between leadership behaviors and high patient satisfaction scores with the objective of deriving a model that conceptualizes the underlying social relationships and make-up of this particular population in healthcare. The study will raise awareness within the healthcare sector as to how some leaders consecutively earn patient satisfaction scores in the 90th percentile. By interviewing healthcare leaders, various elements will begin to emerge which may include communication methods, attributes of the leader, and processes and systems that may exist within the culture. The participant selection criterion for the healthcare leader is the manager, director, or physician, within a particular unit or department. The participants will chose from among inpatient, outpatient, ambulatory and emergency services. Healthcare leaders participating in the study will be identified with having patient satisfaction scores in the 90th percentile for a consecutive three-year period. The participants will be among inpatient, outpatient, ambulatory and emergency services. Healthcare leaders participating in the study will be identified with having patient satisfaction scores in the 90th percentile for a consecutive three-year period and will consists of five semi-structured interviews with these types of leaders. The qualitative study lends a unique approach to explore the emotions of leaders and participants within a real healthcare situation offering new insight and knowledge of the healthcare culture.
 
Bio:
Tami Lewis is the Director of Service Excellence at Robinson Memorial Hospital. She created and developed the service excellence department at Robinson Memorial Hospital and has 14 years’ of experience in organization leadership. She works collaboratively with directors, front line supervisors, physicians and other health care professionals to create action plans, develop and teach behavioral skills to staff, and promote collaboration among departments. Tami has been featured in Modern Healthcare Cover Story on Value Based Purchasing as well as the hospital healthcare magazine Robinson Today. She was an expert panelist for the Healthcare Executives Association of Northeast Ohio (HEANO) and was also featured on WKYC’s Good Company morning news show discussing service excellence initiatives and the role of a patient advocates at Robinson Memorial Hospital.

Logan Kendall
PhD Candidate, University of Washington

Research Title:
Identifying Information Needs and Strategies for Patient Involvement in Hospital Safety

Research Description:
Despite increased attention to patient safety, medical errors are still widespread throughout the United Sates. In addition, health care organization are increasingly recognizing the value of patient participation when delivering care. The challenge is that, within a hospital environment, the current patient experience is information poor and few tools exist to support patients’ awareness regarding their care-related activities. Through the research, this study will evaluate the inpatient experience in relation to patient concerns and their situation awareness around their care. Using a mixed methods approach, the aim is to (1) characterize hospitalized patient and family-member concerns and their relationship to staff-reported events in a hospital safety surveillance system; (2) evaluate patient attitudes towards engagement around safety and information needs relating to their care; and (3) identify design approaches to presenting care information to patients to support discussions with providers about the plan of care and concerns about undesirable events. Through this research, the study will contribute to a deeper understanding of patient information needs in a hospital environment that can inform future technology development. This work will help medical systems to improve the overall patient experience and incorporate this valuable perspective into their safety management strategies. Empowering the patient and encouraging proactive dialogue between the patient and provider team around questions and concerns can support anticipatory behavior that increases overall system resilience.
 
Bio:
Logan Kendall is a PhD Candidate in Biomedical and Health informatics in the School of Medicine at the University of Washington. His current work focuses on the intersection of human-computer interaction, personal, and clinical health informatics. Specifically, this includes evaluating the patient experience to inform the design of information technology tools that will enhance care transitions, patient engagement, and patient safety. He previously received a B.S. in global health and technology from the School of Foreign Service at Georgetown University. He also has a Master of Health Administration degree from the University of Washington. Prior to his research career, Logan worked as a business consultant in project management and information technology in Washington, DC. He has since conducted research with the Seattle-King County Public Health Department, Microsoft Research, and several hospitals in the Seattle area.

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Donna Kincheloe
Doctor of Nursing Practice Candidate, University of Southern Indiana

Research Title:
The Effectiveness of a Spiritual Care Toolkit to Facilitate Spiritual Care Needs

Research Description:
Spiritual care in the acute care setting has great potential to enhance the patient/family experience through nurses offering tangible resources that help maintain and preserve what individuals normally do to meet their spiritual needs. A mixed-method study will provide nurses and patient/family spiritual perspective quantitative and qualitative data regarding the effectiveness of an evidence-based spiritual care toolkit. The definition of spirituality and recommendations for resources will be gathered.
 
Bio:
Donna D. Kincheloe loves learning, research, and holistic nursing practice. In 1978, she graduated with a nursing diploma and presently is working on a Doctor of Nursing Practice (DNP) capstone project. A staff nurse of a Magnet designated facility, she will serve as Chair of the Research and Evidence-Based Council during 2016. Some of her most humbling accomplishments include: an inspirational non-fiction book, I Never Walk the Halls Alone: A Nurse’s Private Collection of God’s Critical Care and an innovative educational CD, Nursing Measures. Donna loves spending time educating, encouraging, singing and praying with patients and co-workers, when the need arises. Donna and her husband, Allen live in Indiana with their Vizla and Brittany. One grown son, Will, completes the family portrait. Hobbies include gardening, cooking, baking, birding, knitting, reading, and writing. Making others feel special reaps joy. Building compassionate relationships makes one rich. Enhancing patient/family experience is nursing!

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Gayle Ridgway
DNP Candidate, University of Massachusetts at Dartmouth and Private Contractor, CRNA Group, Anesthesia Professionals

Research Title:
An Educational Intervention to Increase Nurses’ Knowledge and Attitudes of Postoperative Pain Management to Improve Patient Satisfaction

Research Description:
Research Goals: 1. Identify gaps and potential barriers in nurses’ knowledge and attitudes regarding pain management. 2. Develop and implement an educational program to improve knowledge and attitudes regarding pain management for improved patient satisfaction and outcomes. This quality improvement project utilizes a pre-test, post-test design to guide the development of an educational intervention to improve nurse knowledge and attitudes regarding pain management. Ferrell & McCaffery’s "The Knowledge and Attitudes Survey Regarding Pain” (2012) was selected for this pilot project with the author’s permission and will be used for pre and post-test with nurse participants. Post-testing will be initiated after the educational intervention to assess its effectiveness. Concurrent with the time frame of the pre and post-test of the nurse participants, postoperative patients, will be interviewed using the HCAHPS three questions on pain to assess patients’ satisfaction. Quantitative and qualitative descriptive analysis will be used to evaluate results. Evidence-based practice design model will be followed by supporting the nursing staff with regularly scheduled in-services to increase knowledge base, improve communication techniques for managing patients’ pain, and support their clinical decision making at the bedside, thereby improving pain management, patient satisfaction and patient outcomes. The International Association for the Study of Pain states that since pain management was recognized as a specialty in the 1980s, patients continue to be undertreated with only one in four patients reporting their pain is under control. Lack of knowledge with pain management persists and continues to be a global public health concern. Patients have the right to expect healthcare professionals to be knowledgeable, up to date, and deliver the highest quality of care when managing their pain.
 
Bio:
Gayle Ridgway is a practicing nurse anesthetist with over 28 years of experience. She is licensed as an advanced practice nurse anesthetist in four states to provide all aspects of anesthesia, and is currently a private contractor with the CRNA group, Anesthesia Professionals. She has medical staff privileges in Southeast Massachusetts at acute care hospitals, surgical centers, eye centers, and endoscopy suites. Gayle is also a Professor of Nursing at Cape Cod Community College where her focus is to educate and guide students to enhance patient experience and improve outcomes through evidence based practice and continuity of care. She has taken an active role in staff education in acute care throughout the years and won an Excel Award for her education efforts. She also volunteers with the Medical Reserve Corp Disaster Team, assisting with emergency shelter operations and disaster drills for Cape Cod and the Islands. Gayle is a member of Sigma Theta Tau International Honor Society for Nurses. She received her ADN at University of South Carolina in Akin, S.C., her BSN at Medical College of Georgia (now Georgia Regents University), GA., and her Masters in Nurse Anesthesia at Medical College of Pennsylvania (now Drexel University), PA. Gayle is currently pursuing her Doctor of Nursing Practice at the University of Massachusetts Dartmouth, North Dartmouth, Massachusetts.

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Claire Senot
PhD Candidate, Operations Management, The Ohio State University

Research Title:
The Financial Impact of Combining Clinical and Experiential Quality in U.S. Acute Care Hospitals

Research Description:
We define clinical quality, which relates to patient safety, as the level of adherence to technical standards of care. High levels of clinical quality are associated with efficiency because the required tasks for a given diagnosis are implemented consistently. On the other hand, experiential quality, which relates to patient centeredness, is associated with flexibility and measures the extent to which the care that patients receive while in the hospital meets their unique preferences and needs. Thus, achieving high levels of experiential quality requires adapting the delivery of care to the unique patient. Our study involves 3 phases: 1) Collecting operational and financial data for U.S. acute care hospitals. Financial performance is a particularly relevant performance measure given the emphasis for hospitals on offering affordable care. Hence, we use a hospital’s operating margin as our outcome measure. 2) Performing econometric analyses on these data to investigate the financial consequences for hospitals of improving clinical quality (efficiency) and experiential quality (flexibility). We also investigate the moderating role of hospital size on these relationships. 3) Conducting follow-up interviews in U.S. acute care hospitals to verify our findings. The anticipated contributions to the body of knowledge on patient experience are threefold: 1) We aim to clarify the relationship between experiential quality (patient-centeredness) and hospital financial performance which is often ignored. 2) We aim at investigating whether a complementarity between patient safety and patient centeredness exists with regards to financial performance. 3) We aim at understanding the specific effects of hospital size on these relationships.
 
Bio:
Claire is currently a PhD Candidate in Operations Management at the Fisher College of Business, The Ohio State University. Her research interests include healthcare operations, quality management and organizational learning. She recently received the Best Student Paper Award 2011 from the Operations Management division at the Academy of Management annual meeting for her research examining the tension between clinical and experiential quality. Her work is forthcoming in the Manufacturing & Service Operations Management (M&SOM) journal. Claire has a MBA from the Fisher College of Business with majors in operations and corporate finance and a Master degree from Audencia Graduate School of Management, France. She also worked as a senior inventory analyst at Sears Holdings, Chicago and was a process improvement analyst at Trimex, Australia.

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Deborah Waltermire-Burton, MHS, OTR/L
Doctorate of Public Health Candidate, Johns Hopkins Bloomberg School of Public Health

Research Title:
How Do Family-Centered Rounds Affect the Family Experience in Pediatric Inpatient Settings?

Research Description:
Hospitals and healthcare organizations are increasingly interested in improving the quality of healthcare and the patient/family healthcare experience. Various strategies may be implemented in this process, including initiatives to enhance patient- and family-centered care. One such strategy is Family Centered Rounds. Family Centered Rounds (FCR) are a style of daily hospital rounds that ideally include parents or family members in collaborative discussions with the members of the medical team, sharing information and decision-making. FCR are not always well defined or practiced consistently across multiple providers despite their claims to be providing FCR. Additional work is needed to fully understand behaviors and actions that comprise high quality FCR and the impact on the patient experience, especially in various contexts. This project proposes to study family centered rounds at the Johns Hopkins Children’s Center and obtain feedback from parents regarding their experiences with rounds in an effort to more fully understand rounds and identify opportunities for improvement. This project has the potential to contribute to broader understanding of factors that comprise effective FCR, especially from parents’ perspectives. Clearer definitions of the FCR process may then be applied in various settings and may increase engagement of parents. Changing or improving processes also influences organizational culture, thus enhancing a culture of family centered care, which has the potential to impact healthcare experiences for families and patients across the institution.
 
Bio:
Deborah Waltermire-Burton is a doctoral candidate in the Department of Health Policy & Management at the Johns Hopkins Bloomberg School of Public Health. She has over 25 years of experience as an occupational therapist in various settings including inpatient adult psychiatry, acute care & rehabilitation as well as academic education. Since 2009, Debbie has served as a parent advisor on the Family Advisory Council at the Johns Hopkins Children’s Center, which emphasizes patient- and family-centered care. She earned a Master of Health Science in Health Finance & Management from the Johns Hopkins School of Hygiene and Public Health, and she earned a Bachelor of Science in Occupational Therapy from Elizabethtown College where she is also currently a part-time lecturer. Because of her professional and personal background, she has strong interests in improving healthcare processes and experiences for patients and families.

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